Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Sunday, May 15, 2011


Callie has been doing awesome since returning from California in April. Her appetite has picked up and she is eating quite a bit now. She has put on some weight as a result and grown about an inch since returning from California:)

Callie had a blast at Easter hunting eggs!

Miss Chatterbox, that should be Callie's new name! She talks nonstop, when I think about this time a year ago, she has come so far. Callie is so full of herself and her personality lights up the room.

I received a call from California a few weeks ago, they had already went ahead an scheduled Callie's next open heart surgery. It kinda took me by surprise because I had been plannig to schedule it. So, Callie's surgery is scheduled for August 3rd. We are leaving July 28th. Seems so close and my heart is so heavy about it. But, it is what she needs and its one step closer to having a completely mended heart:)

We are thankful we have the summer to spend doing whatever we want as a family and we plan on making the most of it:) Callie continues to be in love with the beach, so I'm sure our summer will include lots of trips to the beach!

Thanks for checking in!

3 comments:

  1. Great update :-) I'm sure you're going to have a wonderful summer together, enjoying every minute of it! Surgery is close, but with everyone praying and sending out positive energy, Miss Callie will come through with flying colours! Take care xoxoxox

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  2. Yeah Callie! We are soooo very proud of you. I think you and Reagan would have a blast together if we were closer. Reagan has a cath scheduled for July 20. I wish we could see ya'll but pray all goes well and we will not still be there on the 28th. Have a great summer!!!
    P.S. I love your bathing suit!

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  3. So glad to read that Callie is doing so well!!! She has grown so much since we met at Stanford last year!!!

    Hugs,
    Mason's Mommy

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