Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, April 1, 2011

Sleepy Girl

Callie was discharged at around 11am, we went back to the room and she climbed right in the bed and slept while I took a shower. She was so tired and relieved to be out of that hospital. I had to wake her up so I could go get something to eat...the last time I ate was like 2pm yesterday! I was starving!!!!!!!!! Poor baby, slept the whole entire time I ate and then came back to RMH and slept another 4hrs. She was able to do some arts and crafts tonight which she really enjoyed=) Please pray for her, she is having a hard time understanding why her Daddy isn't here! She doesn't realize he can't just jump in the car and come and see her=( Breaks my heart!

I have a meeting tomorrow at 930am with Dr. Hanley to discuss the results of the cath. I am very anxious to see what he has to say.

Thanks for all the prayers, we are so grateful for all the support.

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