Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Monday, March 28, 2011

A Long Day...

Callie and I made it to California, but it sure has been a long day! We almost missed our connecting flight in Houston, due to our plane leaving Jacksonville late:/ Callie was a superstar on the flight:)

We arrived in SFO with no place to go because a room still wasn't available at RMH and the Housing Dept. that gets you in a Hotel, never returned my phone call!! Very stressful situation, thankfully Callie's social worker at the Hospital helped to book us a Hotel.

So, we are now in a Hotel and praying a room opens up at RMH very soon! Callie has pre-op tomorrow at around 12pm California time. Her cath is currently scheduled for 11am on Wednesday but that is subject to change, we will know for sure tomorrow after pre-op what time it will be.

Please continue to keep Miss Priss in your prayers. Please pray for me, my stress level seems to be at the max this trip and things just seem to keep mounting up. These trips are never the easiest and anytime things go a little crazy, it really puts me at the edge....especially when Callie and I are 2200 miles away from our family!

Will update tomorrow after pre-op.

2 comments:

  1. Happy to hear you made it safely, if not smoothly! :-( Fingers crossed a room opens up soon, and extra, extra(!) prayers going up for you both. No question that Callie is a rock star, and her mama is too :-)

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  2. Thinking of your beautiful daughter and your family with prayers.
    Louise in Jacksonville Florida
    (Mom to a 15 year old daughter that was born with TGA)

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