Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Sunday, December 26, 2010

Wishing everyone a Happy New Year!

Hope everyone had a Merry Christmas! Callie had a blast this season, she really understands the Santa thing this year and was so exicited to leave him cookies and milk:)

Callie is doing wonderful, growing like a weed. Still only 22lbs. but as long as she is growing that's all that matters! Latley, it seems everyday she is saying a new word. She is starting to come along with her speech, she has made so much progress since this time last year. So, we are very happy!

She maintains stable from a heart standpoint and will return to California in the end of March, possibly early April. She did have a breathing episode shortly after returning from California in October, we are praying that this was NOT a sign that the upper vein that has a stent in it did not hold. Her stats remain stable but there is no way of telling about that upper vein other than through a cath, so we will wait and see.

Thank to everyone who constantly lifted Callie up in prayer and offered support to us this past year. We will never be able to express how truly grateful we are.

We are hopeful that 2011 will hold great things for our family and most of all Miss Callie. Praying for that little twist of fate that will get her the surgery she needs, inorder to get a break from all this for a bit.

Hope everyone has a Healthy and Happy New Year!