Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, July 8, 2010

July 2010 so far......

It's been a while since my last post, there's not much going on with us:) Callie remains stable and doing great, she actually has a cardiology appt. tomorrow. We are hoping for some weight gain. Callie hasn't gained any weight in about 6mths now:( Despite, even eating better since her last surgery. So, we will see what that scale says tomorrow!!!

We didn't really do anything for July 4th. Will had to work and Callie doesn't really care for the fireworks. So, Callie and I just sat at home and watched them on T.V.

The following day my Mom and I took Callie to a place called PUMP IT UP, it is filled with gigantic inflatable slides, bounce houses, etc. This was her first time and once she got used to it, she had a blast. She was worn out when we left, which is exactly what she needed:)

Enjoy the pics of Callie in her July 4th outfit and from Pump It Up.