Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Wednesday, May 5, 2010

CT Scan, Discharge and Home

Callie had her CT Scan done last Thursday and the results were not surprising. In order to fix the issue she would have to be on bypass during surgery. So, we will return in October for Dr. Hanley to reevaluate the situation and go from there. This is an issue that has to be resolved in order for Callie to have her Glenn. But, we will take it one step at a time. We know Callie will get to her Glenn, one day:)

A few hours after her CT, Callie was discharged and on Saturday we flew home:) Callie was discharged with Methodone and Ativan, so for the first couple of days all she did was sleep. So, I cut her from every 6hours to every 12hours and what a difference. She is finally awake enough to get up and walk around:) The hospital was weaning her slowly due to her withdrawal issues but I think they had her a little too medicated!

Callie's color is sooo much better since her surgery almost 3 weeks ago. It's amazing!! She actually looks pink compared to the shade of blue she has been for so long. I can't wait till Callie gets her full repair, somewhere down the road! Her fingers and toes will be pink then:) In Addition, her breathing is no longer heavy and loud. That shunt definitely needed to be replaced!!!!! Now, we just haveto put some meat back on her bones:)

Can't wait to start going to the beach this summer with Miss Callie! She loves the sand:) We will enjoy our time at home over the next several months. Then, head out again in October for another heart cath. Thank you to everyone for all the support you gave us during this last trip to California. We are very thankful for everything and cannot say, thank you, enough.

Also, please keep 2 very special little girls in your prayers. Miss Reagan who went in for heart surgery this morning and is hopefully getting her full repair:) And baby Arden who is supposed to go in tomorrow for her heart surgery. Please pray that both of their surgeries are successfully and that there are no complications.


  1. Glad you made it home! It was so nice to meet you. We will be out in Oct for Mason's 6 month biopsy also so hopefully we can meet again.

    Love, Mason's Mommy

  2. I have been a follower for awhile but never commented! Im so glad Callie's color is better! Would love to see pictures of you guys at the beach.

    Fellow Heart Mama!