Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, April 22, 2010

One day at a time....

Almost there!! Callie was going to be extubated this morning. But, she didn't tolerate the bare minimum settings on the vent this morning:( So, they are going to give her another day of rest and reevaluate in the morning. Her x-ray was basically on changed from yesterday morning to today. Please pray for total healing of Callie's lungs and we can get this yucky breathing tube out of her VERY soon!

We were able to speak with Dr. Hanley last night and he thinks Callie has done well enough, that she would do just fine having her next surgery. Which would be the left thoracotomy (that I spoke of in the last post) where he would remove the aorta off the lower pulmonary vein. My baby is such a tough cookie! It's so hard to have to watch her go through all this, but I know these surgeries are what she needs and that light at the end of the tunnel is getting closer and closer. We are so thankful to Dr. Hanley for all he has done for our little girl and continues to do. He is such a blessing to so many people:)

We ask for prayer for healing of Callie's lungs, this upcoming surgery, financially since Will continues to be out of work to be here to support his little girl and me. Just for overall strength for Callie, that she continues to pull through like a champ:)

Thank you to everyone for all the support.


  1. Sarah-
    We made it. We're at our hotel. Will try to find you at hospital tomorrow. Reagan's pre-op is at 1:00. Will pray for extubation tomorrow.

  2. Hope all is going well with Callie's recovery! Hope she got extubated!!
    Praying for the best with Callie and your family. We need to meet! We are in CVICU room 45!
    Loves from Summer, Mason's Mommy