Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Thursday, April 15, 2010

On The Right Track......

Callie is doing much better:) Her lung is finally recuperating from the trauma of the heart cath on Monday. Today's goal is just to keep her comfortable and sedated. Hopefully, everything will continue on this track and she will go into surgery tomorrow morning as planned.

We were able to talk to Dr. Hanley yesterday morning and the plan is to replace her shunt with a bigger shunt and he also wants to patch her upper pulomary vein to prevent it from narrowing all the time. He is pretty positive that this will work for her and stop that vein from narrowing every 2 seconds. Dr. Hanley still has hope (even more hope now than ever before) that Callie will make it to her Bi-Directional Glenn, as most of you know, that is the surgery Callie needs to get. But, has had some bumps in the road that has prevented her from getting that surgery. The long term goal is too bring her back in 6mths-a year depending on her progress and do another surgery to remove the aorta of that lower pulmonary vein. And at that point and time, she would possibly be able to have her Glenn somewhere down the road. Which makes us all very HAPPY:) We have full confidence in Dr. Hanley and are so thankful for all he has done for Callie because without him our daughter might not be here today. He is an amazing man and I LOVE HIM:)

Please continue to pray for a quiet day and that things continue in an upward trend and Callie will be good for surgery in the AM. I feel very confident that the Lord has been preparing me for this over the past few days and this is what Callie needs. I know the Lord will see her through this and be with her every step of the way. Will update again in the morning.

1 comment:

  1. Sarah & Will-
    Thinking of you guys and praying for good results tomorrow. The Lord has brought Callie this far and will do the same again. God is good!