Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, April 13, 2010

Heading Into 5th Heart Surgery..........

Callie is doing well, her cath was about 2hrs this time. She was finished about 745pm and she has been resting in the ICU since. The results of the cath showed that really nothing had changed since the last cath in January. Her right shunt is smaller and now TOO small for her and the right upper pulmonary vein was narrowed once again. But, everything else remained unchanged. So, they balloned open that vein again and that was about it. Callie is still resting on the ventilator, her left lung is suffering some. So, it needs a little time to heal. The left lung is her worse lung of the two, so when anything is done it hits it hard sometimes.

The game plan for Callie is to have her right shunt replaced with a bigger shunt. She is scheduled for Friday as of right now for surgery. It's always hard sending your child into a surgery but this upcoming one is weighing exceptionally hard on me. It's been a year and half since Callie's last surgery and it's been so nice. It's very hard to send her into another one but I know she needs this shunt replaced badly and replacing this shunt will hopefully get her breathing back comfortably. And all around in a better place. VERY HARD!!!!!

Right now, it's a little hard for me to sit down and gather my thoughts. So, please forgive me if there are things I haven't explained or are forgetting. Will is hoping to fly out on Thursday and will stay as long as he can. It's very hard on him to be away from Callie during times like these. It just very stressful in general to have your family split up in such an emotional time. I will update as things happen and if anything changes. I appreciate everyone and all the support and prayers everyone has sent our way. Please keep Callie in your prayers, for a successful, uneventful surgery and a speedy recovery.


  1. Sarah-
    Thanks for updating. I know what you mean about sending your child off to surgery when it has been so long. Reagan is set for surgery May 5. If they decide to do it this time, it will have been a year and a half also. It's hard to get back in hospital mode after so much time. Hang in there and hopefully we might see you next Fri. when we're there for Reagan's pre-op appt. Praying Will gets there soon and safely. Give Callie kisses from us!


  2. Praying for Callie's surgery recovery and peace for you and Will.
    Reagan's Aunt Kay

  3. We'll be down there the 21st-23rd. If you need anything, let me know. :)

  4. Hope Will has a safe trip! Praying that Callie has a successful surgery and is home soon! :) Lucas sends his love.