Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Saturday, April 24, 2010


Callie had her breathing tube removed yesterday around 3pm:) Hooray:) She is doing very well on high flow oxygen and they have been weaning that down fairly fast. The hope is by tomorrow have her on regular oxygen! Her x-ray this morning was a little hazy compared to yesterday but overall not too bad. Callie is now off most of her drugs but is still very sleepy. Hopefully, she will wake up some today, to enjoy some Mickey Mouse Clubhouse! Callie's favorite show:)

Callie is schedule for surgery on Tuesday to have her aortapexy. Please continue to keep her in your prayers. Callie has been through soooooo much and I hate to put her through another surgery. It breaks my heart. There isn't anything harder in this world than having to watch your child hooked up to a million things and in pain. Please pray for the continued recovery of her lungs and little body, for the STRENGTH that she will need for this upcoming surgery and that the Lord will be with her every step of the way.

As always, we are so grateful for all the support.

1 comment:

  1. oh my, you guys. i just read reagan's update about her having her cath on monday, and now i see callie will have surgery on tues. justin and i are here, praying for both of the girls...and for the mamas and daddys too.
    much love,