Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Tuesday, January 19, 2010


Callie's cath was cancelled today. She is now on the schedule for Friday. Today was a very stressful and frustrating day! Tomorrow we are supposed to find out if she will be having a heart surgery. So, at least we will be getting some questions answered tomorrow. Callie hasn't been sleeping the best, she wakes up in the middle of the night very frantic and it takes a while for her to get back to sleep. Also, her eating has declined a little, thinking it's the stress of being away from home and her Daddy. Wish Will could be here with us, it would help to relieve some of the stress! Please continue to keep Callie in your prayers and for good news tomorrow. I could use some uplifting news right about now.

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