Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Friday, January 15, 2010

Callie's Cath

Where do I beginning!?! Needless to say, Thursday was a very long, stressful day. Callie went in about 930am and finished around 3pm. This cath was to look at the pulmonary viens on her left side and collaterals, etc. Callie's right side looks great, getting great blood flow to that right lung. I wish the same could be said for the left side. Her left side has many narrowings everywhere. Her upper pulmonary vien was narrowed again, like always, they balloned that back open along with some collaterals. They were only able to balloon half of what needed to be ballooned because they didn't want to do it all and put her lung through extra stress.For some reason it has went from only a few narrowings back in September now to LOTS of narrowings throughout that left side. Her pressures were also very high on the left side, due to all the narrowings. Her pressures were in the 40's, which for those of you who don't know it should be more like 20!! So, Callie spent the night in ICU as an extra precaution due to some bleeding she had in the cath lab and fluid build up on the left lung. She was discharged today around 1230 and is doing well. They want to bring Callie back on Tuesday to have another cath. Callie will have her cath around noon on Tuesday to finish opening up the rest of the areas that are narrowed. Then on Wednesday the are supposed to have a meeting about her with her surgeon to decide the next step. To decide if it's best to send her home or to do another heart surgery. It's discouraging to get this type of news but trying to be strong and positive that this to Callie will overcome and the Lord can bring her past this. My Mom leaves in the morning, so it will just be Callie and I. Sorry, for not updating sooner but things have just been so hectic and stressful. Didn't even get to talk to GI but right now that is the least of my worries. Please keep Callie in your prayers and for my strength to just "DEAL" with everything. I won't deny it's hard but holding on to the Lord is in control and he will see us through this like he always does:) Of course, Miss Callie is a trooper and is so brave! But, I wish I could be the one going through this and not her. She shouldn't have to endure all this, but I know the Lord has great things in store for her. That's the only way I can look at it. Just so everyone knows, I didn't bring my laptop so that's why I haven't been doing a lot of updating. I haveto use the computers at the house and it's hard to get there and sit down and type with Miss High Maintenance. But, I will do my best so bare with me:) Hope everyone is having a great new year.

1 comment:

  1. I'm so sorry the news was not as good as you hoped. Remember God knows we are not strong all the time so when we are not He is. Miss Abigail is not giving me much time to write, but wanted to let you know that I Would love to see you both if you are up for it.
    Terra :).

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