Learn About Callie's Journey with CHD

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Callie was born with an extremly rare, complex congenital heart defect, Hypoplastic Right Heart, Pulmonary Atresia with an Intact Ventricular Septum, MAPCA’s, Pulmonary vein stenosis. Currently she has had 11 heart surgeries,15 heart caths & over 30 blood transfusions.All of her surgeries have been performed at Lucile Packard Children’s Hospital in California by one of the best surgeons in the world, Dr. Frank Hanley.This blog is dedicated to her and her journey as a survivor with Congenital Heart Disease.Her battle is by no means over but we take one day at a time and rejoice in ALL the good times. Please join us in praying for our sweet girl.

Sunday, December 27, 2009

Christmas 2009





Callie had a great Christmas:) My house is covered in toys. JOY!!! As soon as she walked into the living room, she wanted to dig into her gifts. I am happy to report Callie's vomiting issues seem to be resolved. It will be 2 wks on Monday that she has been off the Zantac and since being off that med, we haven't had anymore vomiting issues!!!! I'm thinking she was having a reaction to the med. But, time will only tell if it was the med or if we are just having a good period. If she starts vomiting again then we will try the Prevacid and see how that works. If that doesn't solve it then we are on to doing bloodwork, to see if there's more behind this then what meets the eye. But, hopefully Callie will continue vomit free:) Callie has been proving just how stubborn she can be the past few days. Callie still drinks from a bottle! So, I have put my foot down the past 3 days and been giving her the milk in a sippy cup. Well, the child hasn't drank any milk from that thing in 3 days. She refuses!!!! So, I guess we will continue to butt heads until she decides to drink from the sippy cup:) She drinks everything else frim a sippy cup so there's no reason she can't drink her milk from it. Just being hard headed. That's about all going on around here.

Thursday, December 17, 2009

Cardiology and GI appointments...

Callie saw cardiology on Monday, everything was good. Her weight was still 19lbs. and her height still the same. Everything looked the same since her last echo, which is great. Now, she won't see cardiology until she gets back from her Jan. trip to California. Callie also saw GI on Wednesday for her throwing up, she has been throwing up more and more in the past 3 weeks and I wanted to try and work on get this resolved. Since, we know Callie doesn't have reflux and has had enough swallow studies, upper GI scans done to last her a life time. But, like always he blamed it on her heart and changed her reflux med to Prevacid and sent us on our way. So, we are going to continue to watch her and if things don't start improving we will be doing some blood work. Please pray for her GI issues and we get some relief from the vomiting and our upcoming trip to California. I'm already antsy about this trip! Will update more later with some pics, very tired and ready for bed. Hope everyone is enjoying the COLD weather:)

Thursday, December 3, 2009

Callie showing off her skills.....

video

Here is Callie doing just a few of the signs she knows, she has learned so many that I have lost track. Some of the ones she does at the beginning are kinda halfway, lazy because she is being shy. But, then she warms up:) I was lucky to even get to video her, usually she always wants to take the camera away from me! LOL

Monday, November 16, 2009

Cardiology Appointment

Callie saw her cardiologist today, her appointment went well. She weighs 19lbs. and is 32.5in. One pound away from the glorious 20lb mark!!!!!! Callie remains stable, no real changes. Her breathing is a little harder, which we have notice since returning home from California in September but nothing to be too concerned about. Her next trip to California is schedule for the second week in January. She will have her 7th cardiac catherization and possible heart surgery depending on the results of the cath. We are still working on teaching Callie more sign language, since she is not making any progress with talking at this time. We know it will come, just a matter of when. She still says, her same few words and no more than that. Callie is into baby dolls right now and loves carrying them around, putting her diapers on them and rocking them. She is such a character;) I'm thinking she is really going to enjoy Christmas this year! I can't wait to put the tree up and lights outside, she will be so excited to see all of it. Last year, she still wasn't old enough to really care. Hope everyone has a Happy Thanksgiving:)

Wednesday, November 4, 2009

Halloween Fun:)





Callie refused to where her costume for Halloween, Nana had bought her a cute butterfly costume. But, Callie is a freak about bugs and because it had antennas, she wouldn't go near it. It was pretty hilarious:) We did however try and dress her up as a cheerleader the best we could. She had fun with that! Our pumpkins we carved turned out AWESOME!! All in all, it was a fun day. Hopefully, next year Callie will actually where her costume. LOL In my dreams;)

Saturday, October 24, 2009

Pics from the last couple weeks....





Callie really loves her swing, she could swing all day long and not get tired of it:)

Monday, October 19, 2009

Sleepy!

We missed our cardiology appointment today because we over slept. Oops! So, we will be rescheduling but probably won't get in till next month. Callie is doing well, her lastest thing is McDonalds. She loves the fries and nuggets. Which we are all for!! That's all for now, I will update soon. I am very tired and can't wait to relax:) New pics to come of Miss Callie very soon;)

Sunday, October 18, 2009

Callie's Blog Page....

This is now where I will be posting updates on Callie Ann. I will slowly do away with Carepages. I figured this would be easier for everyone, since you won't haveto log in or anything. Callie has a cardiology appointment tomorrow at 9am, so I will update more tomorrow. Hope everyone is enjoying the cool, crisp weather:)