We are finally settling back in after our trip to California and after having our world rocked from the news received from California. Her team did call from out there to notify me, they hope to start scheduling all her appointments for January in the next couple of weeks or so. We have to plan to be out there for around 3 weeks due to the fact, they want her seen by the single ventricle program and all the docs in that program. Then, evaluating for transplant - which hopefully will be put on the back burner, if this medicine works for her - please keep praying. She also has to have her MRI and heart cath. This all will be a lot for her and us, but will get through it.
Callie will have a follow up with her cardiologist in about 2 wks. Will update then, please keep praying for sweet girl. Thank you all for your continued prayers, just because we are home things emotionally do not get easier, especially when you look at this sweet, happy face and know there is such a battle going on inside her tiny body.